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How do people cope after the event

A selection of comments posted on the http://health.groups.yahoo.com/group/Legionnaires_diseaze_support_group/

Posted by Connie

This is a terrible disease which takes over your entire body. It is a slow moving torture. I had pnuemonia, asthma, memory loss, vertigo. sinus problems, allergies. swelling, rashes, and now a stroke all from :LD. Doctors keep telling me this is a rare disease we will learn its effects togehter. Well the doctors are learning but I am the one who is still sick and getting worse.

Posted by Fel

Hair loss was one of the reasons why my Doc ran a thyroid test. Mine started to fall out 3 months after catching LD. Thyroid replacement worked and my hair is pretty well back to normal - coarse and thick!! Get your Doc to check your thyroid levels. Other problems I've had include increased deafness which "expert" has put down to LD toxins and incapacitating back pain that "expert" thinks may have been due to immobility during and after LD. Most Docs seem to see LD as a respiratory problem only and don't seem to connect other post LD health problems to LD. Thank goodness I don't suffer confusion (debatable says my husband) or increased memory loss. Great site Great people will spread the word to my fellow Coach tour sufferers.

 

Posted by CLIFF


HI 13 MONTHS AFTER THE LD I FEEL A LOT BETTER STILL GET OUT OF BREATH EASY AND LOSS OF MEMORY BUT HAPPY TO BE ALIVE.

Posted by Corey Nolan


28 year old from Indiana, contracted Legionella from water on a fire truck while working on tank. Been tired for more than 3 months now, how long will the weekness last?

Posted by Linda Baku


I contracted LD April 2005 and am in the acute recovery phase. I was hospitalized for eight days and went through three doctors and an unnecessary surgery before the correct diagnosis was made. I would like to know if anyone has heard of any recent cases in Puerto Vallarta Mexico and if there is any way to have the resort I stayed at test or held accountable. In researching this, there were many practices there that would have been conducive to Legionnella overgrowth and spread.

Posted by Ang

I came out of hospital 2 weeks ago after contracting L.D. while on holiday in France/Italy. Although I am recovering really well now I am constantly exhausted. I wake up tired and I go to bed tired. I have read that fatigue and weakness can last for ages...I really hope not! L.D. is nasty. I have a lost about 10 days where I can only remember bits & pieces.
Still , I'm getting there, at least i survived.

Posted by steve brain

I am recovering from nearly dying of it last year and am left with slight brain injury from being hypoxic. I also have a permanent pain in the right side of my head. I would wlcome news from anyone on how to cope.I had complications from the word go which have never gone - particularly permanet severe head pain,cramps. chronic fatigue, memory loss, confusion, lack of concentration andthe expected breathing problems. No-one can offer any help as it is so rare and it all gets very frustrating.

Posted by dorothy

It isn't easy. I've been out of the hospitol for seven monthes and still have acute memory loss. And sometimes can't get the words out right or remember the most simple things. Last week I read a recipe and instead of spraying the cooking spray on the pan I sprayed it in the bowl. I lost clumps of hair and have chronic fatigue, sometimes I feel like it was yesterday since I was sick. They don't have a lot going for them on LD. I finally steered him to this sight to read all the things that I have. I'm only the second case he has ever seen.

Posted by Terry Gilmour


I had LD, ARDS and stroke while on ventilator. 4 weeks on vent in coma. It's been 2 and a half years and I still have problems with both confusion and memory loss.

Notice to you all

If you have survived or have a story to add and wish to contribute to this part of my web site, please drop me a line on my email and I will post it on this site. The more we know, the more we can fight the ignorance. Pass this site on to others.